[Essay] In Memory of the Late Mr. Gwak Min-ho
This morning, a social worker told me that Mr. Gwak Min-ho, a user of our center's personal assistance service, had passed away last Saturday and that his funeral had already taken place. I had known that, the week before, he had been rushed to the emergency room with an acute heart condition and was receiving treatment in the intensive care unit. “I told myself it couldn't be true — but how could you loosen your hold on this life so soon?” The late Mr. Gwak Min-ho was a person with a disability, living with amyotrophic lateral sclerosis, or ALS. Even as I write these words, the “Daily Life of an ALS Patient” section of his Naver blog, Slow Records, lives on through the posts he left behind for fellow ALS patients. On the blog's opening page, a photograph of a middle-aged man in a pink short-sleeved shirt and a hat, smiling brightly, continues to welcome those who share the same pain. Before ALS entered his life, he had been an accomplished small-business owner. According...